On Pluto: Inside the Mind of Alzheimer’s by Greg O’Brien. 2014, Codfish Press. ISBN 978-0-9913401-0-1.
The author and journalist, Greg O’Brien, offers the reader some in-depth snapshots of his mother’s decline – due to the progressive disease called Alzheimer’s. The same disease had also claimed his maternal grandfather.
O’Brien writes of the effects Alzheimer’s had on not only his mother, but on the family was well — where fear, denial and anguish made repeated appearances.
He shares the stages: early, moderate and advanced – and what presents in each stage. He also provides some startling statistics.
“Pluto” is what Greg coins for the disconnect – like drifting or blank stares. The faraway place that people with Alzheimer’s disappear into with more frequency as their affliction takes more and more from them.
On Pluto: Inside the Mind of Alzheimer’s is a unique book. Not only does the author share some of his interactions with, and observations of, his mother’s experiences – he shares his own…with a rare and welcome raw honesty.
In 2009, at age 59, this investigative reporter, writer and publisher was diagnosed with Early onset Alzheimer’s.
Greg O’Brien weaves a tapestry, leaving the reader with a mental visual of his past, present and possible upcoming future; giving an insider view of the struggles, fear, rage, gratitude, grace and humor about his personal journey with Alzheimer’s. And sharing his story to let others know that they are not alone.
Favorite Passages:
“It is vital for those with Alzheimer’s to connect with the past, the long-term memories and relationships.” p. 137
“…our mother was slowly sliding off the face of the Earth, pulled into the metaphorical orbits of Pluto and Sedna.” p. 142
“I’ve begun labeling the toothpaste, liquid soap, and rubbing alcohol. I have attempted often to brush my teeth with liquid soap, and on two occasions gargled briefly with rubbing alcohol. Scope is far better!” p. 72
Personal Notes:
Though this is not my normal genre of book reviews, I was drawn to read this – and am very glad I did.
Alzheimer’s has touched so many people – directly or peripherally.
There is currently no cure.
This is a call of action to help support research to find a cure.
Recommendation:
This book is an introduction to understanding, caring for, living with, or having Alzheimer’s. I believe it would also be helpful to those with other forms of dementia, or those wishing to understand a bit more about dementia.
I thank you, Greg O’Brien, for sharing something painful and personal — to raise awareness, and so that we, the public, can understand a bit better.
Review by Jan Toomer
*A copy of the book was received in return for an honest review.
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